Thursday, 2 June 2011

Day One...not exactly.

So, one week ago we found out Reilly has A.S.D, or also known as Autism Spectrum Disorder. We won't be sure where he is on the spectrum until he is approximately 8 or 9 years old. It feels as though Day One of this journey started last week, and a year ago. Day One also feels like everyday. Waiting for the journey to start, or knowing where it does start. We've only known Reilly the way he is now. It didn't come to a shock to us as his parents that he is Autistic. We've prepared ourselves for this for quite a while, which didn't make  it any easier, by any means.

Everyday is a struggle. What to do, where to go and how to find help. Most days it takes 1000% of our effort, yes 1000%, to make it through the day. A simple as a task as putting Reilly's clothes on in the morning is a challenge. Everything for him as for us feels like a challenge. A never ending challenge. I love our child no matter what. Who he is, what he does or whichever label or diagnosis is attached to him. I wouldnt' change him for the world. As many negatives and struggles thier are about his Autism, they are as many positives. It's just hard to see the positives through the tough negative ones. As soon as you try to see the light at the end of the tunnel it seems as though a thick brick wall stops you from seeing it. We always want to be Reilly's advocate. To help him and other's struggling like he does daily to know it does get better. But were just at the beginning and trying to find our way. All we can do is strap on our seatbelts and hold on tight. Do you want to join us on the ride??

1 comment:

  1. You are caring active parents and that will make all the difference. It will be a journey fraught with challenges but also accomplishments. Keep on loving and laughing :)

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